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Who knew all this would happen afterwards!

Thursday, March 27, 2025

Questions and recovery

 


Medical realities:
Dr. at hospital was checking my condition (no touch, just an interview by my bedside) and I started having the problem which has become worse with this visit. My word finding ability when speaking was horrible...not just what's the word I want for say, a kind of cookie that's black on the outside with sweet on the insides...an Oreo...but saying  words that were kind of similar sounding but of no meaningful connection. This newer thing was saying 'dollhouse' instead of 'doorknob'!

And my respiratory doctor said, you've been taking this drug for how long for your essential tremors? 

A couple of years, I answered. A low dose of an anti-epileptic which also made my hands somewhat more steady...though lately it hasn't been working all that well.

He said that could be causing my mental frustrations. And how did he know? His father had had the same symptoms, and gone through neurological testing to determine if he had Alzheimers (where word jumble happens.) Then he stopped this one drug and things cleared up for him. 

I said that he was lucky to have a son who was a doctor.

He said his father was a doctor also.

Wow, so I thought, maybe normal aging of just forgetting names that I want to remember (movies and singers at the top) can be mine again. No more dollhouses?

I'm now on day 5 without Primidone. Shaky fingers no worse, but can still type. Mental? Who knows, since I'm home pretty isolated. But I have had a few phone conversations, without any big 'dollhouses' evident.

The eyes:
And yesterday talked with my Care Manager by phone, mentioned this conversation...and he could find nothing in his literature (google?) indicating this side effect to Premarin! I called him about my eyes giving me trouble, and my remembering some drug(s) with side effects that effect one's vision. But of course I don't know which one I might be taking that might do that.

So the problem is that the eyes are slow to react to light...and my right eye doesn't dilate at the same rate as my left one. Looking in the hand mirror in a dark room, I would then look towards the window, and my right eye stayed darker quite a noticeable bit longer to change.

Healing:
So I have a doc appointment  this (written on Tues) morning, to check on vision difficulties, and update post-hospital. It's with a new PA so she won't have knowledge of the Premarin thing probably. But I need on record that this is happening, and maybe get suggestions.

And now, something more upbeat!









Wednesday night note:
The PA who examined my eyes agreed I had slow response to light. She referred me to an Eye Doc...not an optometrist, but an ophthalmologist? Whichever, they haven't called yet to set up an appointment.
I'm through taking all the meds from hospitalization, no more antibiotic on an empty stomach and steroids on a full stomach. And now I'm a bloated mess. I hope this weight gain and overly hydrated goes away...about 6 pounds increase in the last week! Silly me, when I'm sick why would I gain weight?

If it's not one thing...

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And today marks 6 months since a lot of rain and wind (remains of Hurricane Helene) ruined the lives and livelihoods and homes of many people here in  Western North Carolina. It will be featured at 7 am on Good Morning America. Since I've been waking up at 5 am lately, this should be a breeze for me to see. (Hospital stays do change one's schedule!)

16 comments:

  1. Two steps forward.... keep on stepping x

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    1. Oh my yes, and baby steps at that. I found last night I was more comfortable using my walking stick just moving around. It kind of clunks on the floor (where another tenant is below) so I am trying not to use it too much. But hey, steps are needed!

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  2. I hope you soon get these issues resolved. Good tip about the side effects.

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    1. Thanks. My fingers and toes are crossed, though my eyes aren't!

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  3. Hello,
    I love the cute signs. I hope the doctors are able to help your health issues.
    Take care, have a great day!

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    1. Hope your Thursday is sweet and happy for you. I'm taking it easy mostly.

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  4. ...medicine is complex, it's good to have doctors who listen.

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    1. I'm pretty lucky to have a good crew working for me.

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  5. Somehow, you seem to maintain a good spirit despite all of your troubles.

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    1. The old bod is falling to pieces, but one must keep on keeping on, I think. I have things yet to do!

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  6. Oh, so difficult as we get older, trying to work out what's a side effect from medication and what is really our bodies. I feel for you! Hopefully at least some of what you're experiencing will be temporary and soon resolve. Sending hugs and healing vibes. Oh, and some of your signs really made me laugh.

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    1. Thanks for your good wishes, and virtual hugs and healing. Glad to share joy of any kind.

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  7. wheels falling off is a thing beyond the age of 70, I have found. I avoid medications as much as possible unless surgery is involved. Physicians tend to go to the pill cupboard for patients frequently ,and lazily I, reckon. Their cocktails are often the cause of dysfunction. Pretty sure that that is something you have considered every time something is prescribed. I had a hysterectomy young in life, was told that HRT's might be the way to go- I refused knowing where premarin came from and the side effects. Soy provided all I needed. Question everything , every drug,-my mother believed in God doctor and had faith in the prescriptions and misdiagnosis that killed her. Just sayin'...I hope your medical team is holistic enough to reckon with the entire Barbara, not just the bits and pieces! You seem a strong, skilled, intelligent human from your brilliant posts and responses- I am sure you will be well soon. Fire smoke is not good for we who have compromised lungs, I hope that you can escape the smoke! Thinking of you with love!

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    1. Thanks for your kind words...yes, I'm avoiding smoke most of the time. Waiting for rain this weekend to help with fires. Medicine is definitely a gift of science, and physicians do tend to like the chemical solutions often (prescriptions.) I've not only got a good primary care dr. but a care coordinator who double checks everything...except when in hospital of course.

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  8. Oh my, quite a lot going on, and yet you still write so well, Barb. That was a good thing, having that doctor.

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  9. Premarin or Primidone or both? Either way, I wish you a full recovery. One of my eyes is permanently dilated, and it’s painful when I have to go out in the sunlight especially driving west in late afternoon.

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